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Coronation Street - Ben's Myotonic Dystrophy Storyline

If you have been affected by the issues raised in this programme see information below offering support and advice. 

Genetic Alliance UK

Genetic Alliance UK is an alliance of over 220 charities and support groups working together to improve the lives of people in the UK with genetic, rare and undiagnosed conditions.

Around 3.5 million people in the UK are affected by rare conditions, which are individually rare but collectively common.We campaign for timely diagnosis, better coordinated care, and improved screening, testing, services and treatment.

Read more or get in touch - https://geneticalliance.org.uk/